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Savannah struggled to find the right medication(s) for her chronic illnesses at 16 years old. Through multiple trials, Savannah was able to find medication that was right for her; but it came with a a massive price tag, and led to disputes with her insurance company. Savannah hopes that sharing her story will help others feel empowered to demand real change.
Diagnosed with Type I diabetes at a young age, Sa'Ra and her sister shared a condition, but not equal access to insulin. Sa'Ra deductible for her insurance restricted her insulin access, and when her sister tried to help by sharing her own insulin supply, she ended up in the hospital.
Due to the insulin shortage and outrageous cost of medication, Antroinette lost her oldest daughter, who was a Type 1 diabetic. Now armed with the knowledge of the dire importance of insulin, Antroinette is devoted to protecting and caring for her younger daughter, who is also diabetic.
Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.
Sue and John own a small business, but with Sue's rhumetoid arthritis they struggled to pay for high health insurance premiums and out-of-pocket costs. When receiving care they were not informed of pricing, and expected to blindly pay thousands of dollars for treatment. John and Sue had to sacrifice milestone celebrations, like their 20th anniversary trip to pay for their outrageous medical bills.
Elizabeth has been living with Hodgkin's lymphoma since 2012. She was on Marketplace insurance, but the out-of-pocket and monthly costs were rapidly increasing. Elizabeth switched to her husband's employer-sponsored insurance and was able to not miss many treatment days. One of Elizabeth's major concerns is the rising cost of care for pre-existing and lifelong conditions.
Avia began feeling symptoms similar to COVID-19. After visiting her doctor for testing, it came back positive. No treatment existed at the time of infection, and was told to stay hydrated and take Tylenol. Luckily, her insurance was able to cover all of her expenses.
Anna, immunocompromised, faced anxiety amid rising COVID-19 cases. Despite experiencing symptoms, she was initially discouraged from quarantine due to timing. While her test returned negative, symptoms persisted. Her insurance initially refused coverage for the test, relenting only after she advocated for herself on social media and had her story picked up by media outlets.
Peter has multiple conditions that require ongoing care and medication. He previously faced exorbitant medical bills prior to the enactment of the Affordable Care Act (ACA). Thanks to Medicare coverage facilitated by the ACA, Peter now has access to life-saving medications and procedures. He has become a staunch supporter and advocate of the ACA.
The last time Martha upgraded her dentures was nearly two decades ago. Her insurance through Medicare does not cover oral health, and other bills take precedence. Martha's son has a developmental disability and requires a higher level of care than she can afford. Martha is one of many individuals pushing for better oral health coverage.